I’m finding that the more “positively negative” my body and brain remain, the less need there is to update outside of what you can find on my social media accounts. You can access my Instagram account on this page, as well as from the home page. Outside of those regular updates, I will absolutely leap back into “Niki News” health status updates here on the website, should anything new rear its ugly head again. Please feel free to reach out via Insta and or the “contact” page here on my site, should you have any patient advocacy or caregiver questions.
The final mission countdown and the goal is sooo close!
Statistically speaking, I am a VERY lucky person. Eleven years beyond a stage IV “death sentence” I’m still here. Unfortunately, too many patients still do not have a favorable outcome with cancer. Lung cancers, breast cancers, melanoma, and several other cancers will do their best to work into the brain.
Brain metastases are still an overwhelming obstacle in patient cancer battles. Brain metastases are the most common type of intercranial tumor. In the United States, an estimated 98,000 to 170,000 cases occur each year. That’s too many people with tragic odds.
Niki’s “Team Brain Fried Betty” is proud to be participating in the BT5K, benefiting the American Brain Tumor Association (ABTA). The ABTA is a strong advocate for the brain tumor community nationwide and we are committed to supporting them in their mission!
Please support my efforts by making a donation to my team or sharing the team page: give.abta.org/brainfriedbetty
VSFB 10k... Chilly and foggy as hell, but that's exactly what is to be expected on base! This was a fun run with a lot of "youngsters" (aka: grown a** adult kids) 😂👏🙌👍 The base folks made this really enjoyable for all involved! Fourth overall for women, but first in the "I'm outlasting other old ladies" category. 🤣😎 Keep running into old age... eventually you start to podium these smaller races. 😜😂 Kudos to the organizers, and props go out to those bold enough to run the Half and Full marathons today! #vsfb #runfun #middleagedandcrazy
He’s back at it again. This one is a definite over achiever. 👏🏻🙌🏻😆😎 Quail always have a male “sentry” watching over the rest of the covy as they feed. Typically, that means the “watchtower guard” is at the top of a nearby shrub, or perhaps standing on the edge of the birdbath. But not this gent. This guy takes his job to the next level. 😂 #californiaquail https://www.audubon.org/field-guide/bird/california-quail
Huge hugs and thanks to Bob and Linda, Patricia, Jessica, Jennifer, Natasha, Heidi, and Kim! 🥰🐻 It’s not too late to get in on the huuuugs! give.abta.org/brainfriedbetty #braintumor #brainradiation #brainsurgery #cancersucks
In 2013, I quite unexpectedly had a grand mal seizure while live on air at work. The brain imaging done in the ER was our introduction to learning that melanoma can find its way to, and set up shop, in the brain. Treatments involved brain surgeries and a loooot of trips through brain radiation. We were in the gamma unit at USC so often, our warped humor became a saving grace. Somewhere in the middle of the mess, Frank called me a “Brain Fried Betty”. I laughed myself to ab cramps, and the nickname stuck.
Statistically speaking, we were very lucky. Eleven years later... I’m still here. Unfortunately, too many patients still do not have such a favorable outcome. Lung cancers, breast cancers, melanoma, and several other cancers will do their best to work into the brain. Researchers and doctors are now researching the brain microenvironment, trial testing new meds, and creating new ways to radiate brain lesions in a way that best preserves the surrounding healthy tissue.
Brain metastases are still an overwhelming obstacle in patient cancer battles. Brain metastases are the most common type of intracranial tumor. In the United States, an estimated 98,000 to 170,000 cases occur each year. That’s too many people with tragic odds.
Team Brain Fried Betty is proud to be participating in the BT5K, benefiting the American Brain Tumor Association (ABTA). The ABTA is a strong advocate for the brain tumor community and we are committed to supporting them in their mission!
Together, we can make a difference and concentrate more funding than we ever could alone. That’s why we are inviting everyone to join team “Betty” in support of patients currently living with brain tumors... and for those whom will be getting that devastating diagnosis this year.
If you can’t make it to the event, you can still support our efforts by making a donation to our team. The process is fast, easy, and secure, and you can be sure that your donation will benefit a cause we trust.
Join us by joining our team or making a donation today! give.abta.org/brainfriedbetty #braintumors #brainmets #cancersucks #gammaknife #brainradiation #fighton #bt5kla #americanbraintumorassociation
Santa Barbara County Farm Day! #science and food… yaaaaas please! 😜🧐🤓 @the.charcuteriecartel servin’ up a kiiiillllller tasty nosh plate! **burp** 🤭 What is not pictured, is the plate of #susieQ seasoned grilled veggies and chunk of beef we polished off first! Oooh… also not pictured are the many berries we snacked, the @sanluissalsa sampled, and the “hits like a food coma bomb” strawberry cheesecake cup from @fresasbydrea 🍓
Neighbor’s house got TP’d. I feel like the kids who did it should be grounded for life. Not for the actual TP job… but for using, what appears to be, their mama’s quality Charmin Ultra. 😳 Dear Gen Z, a short lesson in economics… The Dollar Store sells one-ply for this kind of light duty work.